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| Item Type: | Article |
|---|---|
| Title: | An agenda-setting paper on data sharing platforms: euCanSHare workshop |
| Creators Name: | Devriendt, T. and Ammann, C. and Asselbergs, F.W. and Bernier, A. and Costas, R. and Friedrich, M.G. and Gelpi, J.L. and Jarvelin, M.R. and Kuulasmaa, K. and Lekadir, K. and Mayrhofer, M.T. and Papez, V. and Pasterkamp, G. and Petersen, S.E. and Schmidt, C.O. and Schulz-Menger, J. and Söderberg, S. and Shabani, M. and Veronesi, G. and Viezzer, D.S. and Borry, P. |
| Abstract: | Various data sharing platforms are being developed to enhance the sharing of cohort data by addressing the fragmented state of data storage and access systems. However, policy challenges in several domains remain unresolved. The euCanSHare workshop was organized to identify and discuss these challenges and to set the future research agenda. Concerns over the multiplicity and long-term sustainability of platforms, lack of resources, access of commercial parties to medical data, credit and recognition mechanisms in academia and the organization of data access committees are outlined. Within these areas, solutions need to be devised to ensure an optimal functioning of platforms. |
| Keywords: | Data Sharing, Data Infrastructure, Open Science, Incentives, Science Policy |
| Source: | Open Research Europe |
| ISSN: | 2732-5121 |
| Publisher: | European Commission |
| Volume: | 1 |
| Page Range: | 80 |
| Date: | 23 November 2021 |
| Official Publication: | https://doi.org/10.12688/openreseurope.13860.2 |
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