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Participants' decision to enroll in cohort studies with biobanks: quantitative insights from two german studies

Item Type:Article
Title:Participants' decision to enroll in cohort studies with biobanks: quantitative insights from two german studies
Creators Name:Nobile, H. and Borry, P. and Pischon, T. and Steinbrecher, A. and Boeing, H. and Vigl, M. and Bergmann, M.M.
Abstract:AIM: To understand participants' actual motivations to enroll in cohort studies with biobanks. METHODS: Participants of two such studies currently ongoing in Germany were invited to fill in a questionnaire about their decision to enroll. RESULTS: From the 623 questionnaires completed, contributing to scientific knowledge appeared as a main motive for enrollment, followed by learning about personal health status and receiving personal medical advice. CONCLUSION: Motivating participation as a way to contribute to the common good rather than as a way to obtain personal benefits appears to be particularly appropriate to ensure participants' Long-term commitment and should therefore be further investigated in this setting.
Keywords:Cohort studies, Germany, Participation, Questionnaire, Reciprocity
Source:Personalized Medicine
ISSN:1741-0541
Publisher:Future Medicine
Volume:14
Number:6
Page Range:477-485
Date:November 2017
Official Publication:https://doi.org/10.2217/pme-2017-0049
PubMed:View item in PubMed

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