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Pilot study of psychiatric and social aspects of children and adolescents with fragile X syndrome [Pilotstudie zu psychiatrischen und sozialen Aspekten bei Kindern und Jugendlichen mit Fragilem-X-Syndrom (FRX)]

Item Type:Article
Title:Pilot study of psychiatric and social aspects of children and adolescents with fragile X syndrome [Pilotstudie zu psychiatrischen und sozialen Aspekten bei Kindern und Jugendlichen mit Fragilem-X-Syndrom (FRX)]
Creators Name:Häßler, F. and Gaese, F. and Colla, M. and Huss, M. and Kretschmar, C. and Brinkman, M. and Peters, H. and Elstner, S. and Weirich, S. and Pittrow, D.
Abstract:Objective: The study describes the burden of psychosocial risks of mental illnesses and the ways in which children and adolescents with fragile X syndrome (FRX) can be treated. Method: Data from a sample of 34 patients with FRX younger than 18 years stemming from a prospective multicenter (n = 11) registry study (EXPLAIN) were analyzed with regard to psychosocial burden and treatment. Results: One third of all participants reported having relatives who suffer from FRX. The majority of participants were suffering themselves from one kind or another mental or neurological problems. Younger participants (< 14 years) tended to suffer from atactic disorders, epileptic seizures, and autistic symptoms. These disorders were usually treated by psychotropic drugs supplemented by logopedic therapies and occupational therapies (more than once a month). In our sample, 96.3 % of the younger patients and more than 57.1 % of the older patients were still living with their parents. Conclusions: Patients with FRX often suffer from additional neurological and mental disorders. For that reason, they should be diagnosed and treated early on.
Keywords:Fragile X Syndrome, EXPLAIN Registry Study, Children and Adolescents, Psychiatric Symtoms, Therapy
Source:Zeitschrift fuer Kinder- und Jugendpsychiatrie und Psychotherapie
ISSN:1422-4917
Publisher:Verlag Hans Huber (Switzerland)
Volume:45
Number:2
Page Range:141-147
Date:March 2017
Official Publication:https://doi.org/10.1024/1422-4917/a000466
PubMed:View item in PubMed

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