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| Item Type: | Article |
|---|---|
| Title: | Pilot study of psychiatric and social aspects of children and adolescents with fragile X syndrome [Pilotstudie zu psychiatrischen und sozialen Aspekten bei Kindern und Jugendlichen mit Fragilem-X-Syndrom (FRX)] |
| Creators Name: | Häßler, F. and Gaese, F. and Colla, M. and Huss, M. and Kretschmar, C. and Brinkman, M. and Peters, H. and Elstner, S. and Weirich, S. and Pittrow, D. |
| Abstract: | Objective: The study describes the burden of psychosocial risks of mental illnesses and the ways in which children and adolescents with fragile X syndrome (FRX) can be treated. Method: Data from a sample of 34 patients with FRX younger than 18 years stemming from a prospective multicenter (n = 11) registry study (EXPLAIN) were analyzed with regard to psychosocial burden and treatment. Results: One third of all participants reported having relatives who suffer from FRX. The majority of participants were suffering themselves from one kind or another mental or neurological problems. Younger participants (< 14 years) tended to suffer from atactic disorders, epileptic seizures, and autistic symptoms. These disorders were usually treated by psychotropic drugs supplemented by logopedic therapies and occupational therapies (more than once a month). In our sample, 96.3 % of the younger patients and more than 57.1 % of the older patients were still living with their parents. Conclusions: Patients with FRX often suffer from additional neurological and mental disorders. For that reason, they should be diagnosed and treated early on. |
| Keywords: | Fragile X Syndrome, EXPLAIN Registry Study, Children and Adolescents, Psychiatric Symtoms, Therapy |
| Source: | Zeitschrift fuer Kinder- und Jugendpsychiatrie und Psychotherapie |
| ISSN: | 1422-4917 |
| Publisher: | Verlag Hans Huber |
| Volume: | 45 |
| Number: | 2 |
| Page Range: | 141-147 |
| Date: | March 2017 |
| Official Publication: | https://doi.org/10.1024/1422-4917/a000466 |
| PubMed: | View item in PubMed |
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