Participants' decision to enroll in cohort studies with biobanks: quantitative insights from two german studies

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Item Type:	Article
Title:	Participants' decision to enroll in cohort studies with biobanks: quantitative insights from two german studies
Creators Name:	Nobile, H., Borry, P., Pischon, T., Steinbrecher, A., Boeing, H., Vigl, M. and Bergmann, M.M.
Abstract:	AIM: To understand participants' actual motivations to enroll in cohort studies with biobanks. METHODS: Participants of two such studies currently ongoing in Germany were invited to fill in a questionnaire about their decision to enroll. RESULTS: From the 623 questionnaires completed, contributing to scientific knowledge appeared as a main motive for enrollment, followed by learning about personal health status and receiving personal medical advice. CONCLUSION: Motivating participation as a way to contribute to the common good rather than as a way to obtain personal benefits appears to be particularly appropriate to ensure participants' Long-term commitment and should therefore be further investigated in this setting.
Keywords:	Cohort studies, Germany, Participation, Questionnaire, Reciprocity
Source:	Personalized Medicine
ISSN:	1741-0541
Publisher:	Future Medicine
Volume:	14
Number:	6
Page Range:	477-485
Date:	November 2017
Additional Information:	Copyright © 2017 Future Medicine Ltd
Official Publication:	https://doi.org/10.2217/pme-2017-0049
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PubMed:	View item in PubMed

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